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    Home » A Life Rewritten: KFSHRC Treats Rare Disease After 22 Years of Specialized Care
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    A Life Rewritten: KFSHRC Treats Rare Disease After 22 Years of Specialized Care

    Kuwaiti TribuneBy Kuwaiti TribuneJuly 9, 2025No Comments3 Mins Read
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    In a uncommon instance of a lifelong bond between a affected person and a healthcare establishment, King Faisal Specialist Hospital & Analysis Centre (KFSHRC) in Riyadh has continued to help a affected person since infancy, offering 22 years of steady take care of a uncommon genetic blood clotting dysfunction, finally culminating in a liver transplant—the primary of its sort globally for this specific situation.

    When the early indicators of sickness appeared in the course of the affected person’s first months of life, KFSHRC groups raced in opposition to time to stabilize her situation. She was recognized with a congenital deficiency in plasminogen, a protein important for dissolving blood clots, leading to fibrous deposits that posed critical threats to her tissues and organs.

    The complexity of her case posed each medical and quality-of-life challenges, requiring a complete, multidisciplinary care system. This prolonged past medical therapy to incorporate all sides of life-supporting care. Groups from nursing, diet, and knowledge expertise joined hematology and transplant specialists to make sure the younger lady’s well-being.

    In a mirrored image on the early days, the affected person’s father mentioned: “My daughter suffered from the second she was born. She cried consistently and couldn’t nurse. We lived in steady fear with no clear solutions till God opened a door of hope. As we speak, because of God first, after which to the outstanding healthcare capabilities offered by the Authorities of the Custodian of the Two Holy Mosques and His Royal Highness the Crown Prince, could God protect them, we witness our daughter’s restoration from this uncommon illness after 20 years of battle.”

    All through the years of therapy, the affected person relied on common intravenous doses of plasminogen, together with eye drops to scale back the illness’s impact on her imaginative and prescient. The annual value of therapy exceeded 6 million SAR, absolutely coated by the Saudi authorities. This displays the Kingdom’s profound dedication to human well being and its funding in high quality of life even in probably the most complicated medical instances.

    Dr. Hazzaa Al-Zahrani, Director of Grownup Hematology and Stem Cell Transplant Division at KFSHRC Riyadh and the supervising doctor, defined that managing the case required a exact and long-term method to stop issues and guarantee stability. The choice to proceed with a liver transplant got here after cautious consideration as a rare therapeutic choice for an exceptionally uncommon case. The success of the process marked a turning level in her medical journey and a beacon of hope for sufferers dealing with comparable circumstances worldwide.

    This method is deeply rooted within the imaginative and prescient of King Faisal Specialist Hospital & Analysis Centre, which locations the affected person on the core of each apply and is dedicated to delivering built-in care the place scientific experience meets human compassion, according to its mission to serve society on the highest requirements.

    For extra data, go to www.kfshrc.edu.sa or contact our media staff at [email protected]





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